University of Canberra’s WellRes Unit and the Australian Institute of Health and Welfare are delivering the first national Living with Dementia Survey to help better understand the experiences of people living with dementia in our community.

There are two surveys:

1. The People Living with Dementia Survey can be completed by people with dementia who are living in the community (i.e. at home, not in a residential care facility) with the support of a care partner if needed.

To participate, click on the button below to access the consent form and more information about the survey

The survey has been extended until 16 January 2026.

2. The Living with Dementia Carer Survey has now closed.

You can also register with Step Up for Dementia Research here.

Who is eligible to participate?

People with dementia living in the community (i.e. at home, not in a residential care facility). They may have a formal diagnosis or be going through the process of getting a diagnosis. They also may have tried to get a diagnosis in the past but for whatever reason do not have one at this time.

The survey can be completed in Mandarin, Cantonese, Vietnamese, Italian, Greek, and Arabic.

More information about the project, how your personal details will be kept confidential, and the voluntary nature of the surveys can be found by clicking on the project information sheets below:

– People Living with Dementia Survey information sheet

– Living with Dementia Carer Survey information sheet

Contact the survey team on the freecall number 1800 964 333 or via email at dementiasurvey@canberra.edu.au